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Charity Type Clubs & Associations in Nedlands

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Clubs Associations in Nedlands


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Autism West

Autism West Support Inc is a not for profit organisation that provides a range of services to people who are affected by Autism.

  • Type:Volunteer,Charity,DGR 1 Status
  • Charity:Disabilities

Details

  • Employees (FTE):12
  • Established:2000

Description

<p> Autism West is associated with the South West Autism Network (SWAN). SWAN is a not for profit, charitable organisation supporting the families in the south west region of Western Australia living with Autism Spectrum Disorder.</p> <p> We have many activities and programs that are running across 2014. If you require further information or want to register your interest, please contact Gabriella on 6389 1833 or email <a href="mailto:[email protected]">[email protected]</a>.</p>

Cystic Fibrosis Western Australia

This Association is a self-help organisation, holding regular meetings to share information, purchase equipment and fundraise to support research into cystic fibrosis.

  • Type:Charity
  • Charity:Fundraising,Information & Referral

Details

Description

Who are we?
Cystic Fibrosis Western Australia was established in the 1970’s by a group of concerned parents. The Association was a self-help organisation, holding regular meetings to share information, purchase equipment and fundraise to support research into cystic fibrosis.

In essence the work of CFWA remains the same today. We provide education, counselling, advocacy, recreation and home care services. We also provide home nursing and physiotherapy services to enable early discharge and early intervention from hospital.

Mission Statement
Our mission is to contribute to the social, physical and emotional well being of those affected by cystic fibrosis and to assist in the promotion of research.

Our Philosophy
Cystic Fibrosis Western Australia believes that each person should be given the best care and support that it can provide in a comprehensive, empathetic and professional manner.

Our Vision
Lives unaffected by CF. 

Fibromyalgia Support Network

Dr Kaye Brand PhD established the Fibromyalgia Support Network in Perth, Western Australia in 2008. Professionally Dr Brand is a Physiotherapist. She was diagnosed with Fibromyalgia over 15 years ago and found that there was very little education and support for people with this condition in Western Australia.

  • Type:Charity
  • Charity:Mental Health

Details

Description


We run monthly meetings at the Melville Library. Most months we have a specialist guest speaker, and then a catch-up/chat time afterwards. They are on the first Thursday of every month.

There is also a growing list of social coffee mornings in Perth, the suburbs, and the country. They are held monthly in Albany, Baldivis, Bicton, Bunbury, Geraldton, Gosnells, Mandurah, Margaret River, Mindarie, Morley, Mullaloo, Rockingham, South Perth and Wanneroo. We also have a weekend coffee morning, in Kings Park.

Motor Neurone Disease Association WA (Inc)

MNDAWA is a registered charity and support organisation that works with people living with Motor Neurone Disease, their families, friends and carers throughout WA.

  • Type:Charity
  • Charity:Disabilities

Details

Description

MND is a group of diseases in which the neurones (nerve cells) controlling the muscles fail to work normally. With no nerves to activate them, the muscles gradually weaken and waste. The senses, memory and intellect usually remain intact.

Other names for MND include; Lou Gehrig's Disease (USA), ALS (Amyotrophic Lateral Sclerosis), Maladie de Charcot (1869), Creeping Paralysis.  

Neurofibromatosis Association of WA Inc

To support neurofibromatosis sufferers and their carers by bringing families and individuals together and to promote awareness within the community, particularly amongst medical practitioners.

  • Type:Charity
  • Charity:Information & Referral

Details

Description

Neurofibromatosis (NF) is one of the most common genetic conditions and can affect anyone, regardless of family history, race, gender, or ethnic background.

There are three types of NF, type 1 (NF1),  type 2 (NF2), and the lesser known Schwannomatosis. NF1 affects approximately one out of every 3-4,000 individuals.  NF2 and Schwannomatosis affect one out of every 35-40,000 individuals.

NF is characterized by the growth of benign tumours called neurofibromas. These tumours can grow anywhere in the body where there are nerve cells. This includes nerves just under the surface of the skin, as well as nerves deeper within the body, spinal cord, and/or brain.

In NF1, neurofibromas most commonly grow on the skin or on the nerve to the eye. A tumour which grows on the nerve to the eye is called an optic glioma and, if it grows large enough, can cause problems with vision, including blindness.

In NF2, neurofibromas most commonly grow within the spinal cord or brain. Specifically, the tumours are found on the nerves to the ear, called acoustic neuromas, or the nerves for balance, called vestibular schwannomas. Acoustic neuromas, if large enough, can lead to deafness.

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