Who are we?
Cystic Fibrosis Western Australia was established in the 1970’s by a group of concerned parents. The Association was a self-help organisation, holding regular meetings to share information, purchase equipment and fundraise to support research into cystic fibrosis.

In essence the work of CFWA remains the same today. We provide education, counselling, advocacy, recreation and home care services. We also provide home nursing and physiotherapy services to enable early discharge and early intervention from hospital.

Mission Statement
Our mission is to contribute to the social, physical and emotional well being of those affected by cystic fibrosis and to assist in the promotion of research.

Our Philosophy
Cystic Fibrosis Western Australia believes that each person should be given the best care and support that it can provide in a comprehensive, empathetic and professional manner.

Our Vision
Lives unaffected by CF. 

About Muscular Dystrophy

 

Muscular dystrophy is a neuromuscular, genetic disorder which results in the progressive deterioration of muscle strength and function. There are in excess of 70 types of muscular dystrophy affecting more than 20,000 Australians.

Western Australians living with muscular dystrophy face daily challenges – their muscles waste away which steals their independence, they are confined to electric wheelchairs because they can no longer walk, and in many cases, each day, it becomes more difficult for them to breathe.

 

<p> As a registered charity and the only bone bank in Western Australia, PlusLife provides an essential service to the health sector. Amongst the recipients are children and adolescents with spinal deformities, bone tumour patients (generally young people who have avoided amputation of a limb by recieving a transplant); and many patients with arthritic joint disease caused by dibilitating arthritis and trauma, whose mobility and general wellbeing has been improved by receiving bone grafts from PlusLife.</p> <p> <u><strong>Primary Objective</strong></u></p> <p> To enhance the life of patients by providing the highest quality grafts (transplanted tissue) for their surgical treatment and to acknowledge the generous gift of donation.</p> <p> <u><strong>How Can People Donate Bone/Tissue?</strong></u></p> <p> PlusLife operates two bone/tissue donor programs:</p> <p> <strong>Living Donation</strong> - PlusLife accepts donations from patients undergoing hip replacement surgery. These patients may donate the femoral head (ball part) of the hip joint, which is otherwise discarded as a routine part of the hip replacement surgery. PlusLife Donor Liaison staff discuss donation with hip replacement patients and obtain their consent before surgery.</p> <p> <strong>Cadaveric (deceased) Donation</strong> - with the consent of the next of kin, PlusLife may also retrieve bone and tissues (including tendons and ligaments) from deceased persons. This program provides the large structural grafts used for major limb saving and reconstruction procedures for patients with bone cancers and those requiring complex joint replacement surgeries. </p>